Meet Cyrena from the PatientsLikeMe Team of Advisors

  Say hello to Cyrena, another member of your 2015-2016 Team of Advisors. Cyrena is living with bipolar II and lupus, and currently a PhD candidate in pharmacology. Cyrena describes some days with her conditions as “swimming through a vat of molasses” — which makes managing her intensive student workload along with her health a… Continue reading Meet Cyrena from the PatientsLikeMe Team of Advisors

“In my own words” – PatientsLikeMe member Edward shares about living with schizoaffective disorder

Meet Edward, a member of the PatientsLikeMe mental health community. He’s been living with schizoaffective disorder since the late 1970s, and over the past 35 years, he’s experienced many symptoms, everything from paranoia and euphoria to insomnia and deep depression. Below, he uses his own words to take you on a journey through his life… Continue reading “In my own words” – PatientsLikeMe member Edward shares about living with schizoaffective disorder

“I am slowly building my self-esteem “ – PatientsLikeMe member SuperChick shares about her journey with PTSD

PatientsLikeMe member SuperChick is a veteran living with post traumatic stress disorder (PTSD), and her story is one of learning to cope with emotions and frustrations. She’s living proof that things can get better – she’s a loving mother of two, has a great husband and is managing several other mental health conditions. Below, she… Continue reading “I am slowly building my self-esteem “ – PatientsLikeMe member SuperChick shares about her journey with PTSD

Depression Awareness Month- What does it feel like?

Here at PatientsLikeMe, there are thousands of people sharing their experiences with more than a dozen mental health conditions, including 15,000 patients who report major depressive disorder and 1,700 patients who report postpartum depression. What do they have to say? This word cloud has some of the most commonly used phrases on our mental health forum. It gives you a feel of the many… Continue reading Depression Awareness Month- What does it feel like?

Food for Thought: September weather and autumn recipes

Around the PatientsLikeMe office in Boston, the leaves are beginning to turn red, yellow, orange and gold, and everyone is starting to bundle up as the weather gets colder. In turn, PatientsLikeMe members have been sharing their favorite fall recipes and some thoughts about how the weather impacts the conditions they live with. Here’s what… Continue reading Food for Thought: September weather and autumn recipes

Dispelling the myths of schizophrenia

May is all about mental health awareness, and we’re continuing the trend by recognizing Schizophrenia Awareness Week (May 19 – 26). Schizophrenia is a chronic neurological condition that affects people’s sensory perceptions and sense of being, and it’s time to dispel the myths about the condition. Here are some myths and facts about schizophrenia from… Continue reading Dispelling the myths of schizophrenia

Canine Caretakers: How Service Dogs Can Help Many Types of Patients

Now that PatientsLikeMe is open to any patient with any condition, we’ve noticed more patients with different conditions sharing similar lifestyle modifications. One example is the use of a service dog. What are the benefits – both expected and unexpected – of a four-legged assistant?  We asked some of our members to talk about their… Continue reading Canine Caretakers: How Service Dogs Can Help Many Types of Patients

Mood Patient Interview: How Far I’ve Come

We continue our series from last week of getting to you the person, not just the “patient.” Here’s an interview with member “Bradley25,” a member of our PatientsLikeMe Mood Community who was interviewed for our January newsletter.   Read on to learn more about how comparing his condition over time has helped give him hope… Continue reading Mood Patient Interview: How Far I’ve Come

Sharing and Learning with PatientsLikeMe

In December community newsletters (launched earlier this week), we asked some of our members to think about what they’ve shared and compared in 2010.  Below are highlighted answers from each interviewee across all nine community newsletters.  Thank you for your contributions. We also want to thank all of you who have contributed to the 90… Continue reading Sharing and Learning with PatientsLikeMe

Share and Compare: How are you feeling? Find out with InstantMe!

Here at PatientsLikeMe we strive to give you the tools and functionalities you want and need to gain insights into your conditions, including putting your experiences in context.  Today, we’re introducing a new tool in all of our communities called “InstantMe.”  Want to chart how you’re feeling day in and day out?  Now you can.… Continue reading Share and Compare: How are you feeling? Find out with InstantMe!