Today is International Self-Care Day. There’s even a Senate resolution designating July 24 as a day to recognize the importance of self-care in the U.S. (it’s on 7/24 because, ideally, it should be a focus 24/7 for everyone). Has your self-care — from diet and hydration to hygiene and hobbies — been slipping because of competing priorities? Bring… Continue reading It’s Self-Care Day! 7 “pillars” for taking care of you
Tag: side effects
“Seesawing Libidos”: A podcast for Parkinson’s Awareness Month
April is Parkinson’s Awareness Month, and this year we’re getting personal. “Seesawing libidos,” an episode of WBUR Boston’s Modern Love podcast, explores an unexpected side effect of a Parkinson’s medication: an overactive sex drive. The story comes from comedian Marc Jaffe, whose wife Karen was diagnosed with Parkinson’s 15 years into their marriage. Before Karen’s… Continue reading “Seesawing Libidos”: A podcast for Parkinson’s Awareness Month
Your data doing good: IPF treatment experiences
Every minute of every day, people are sharing their health data on PatientsLikeMe. Some of you are focused on tracking how you’re doing over time. Many want to make sure the next person diagnosed can learn from your experience. All are contributing to the greater good, because what you share helps researchers see what patients… Continue reading Your data doing good: IPF treatment experiences
Depression Awareness Month- What does it feel like?
Here at PatientsLikeMe, there are thousands of people sharing their experiences with more than a dozen mental health conditions, including 15,000 patients who report major depressive disorder and 1,700 patients who report postpartum depression. What do they have to say? This word cloud has some of the most commonly used phrases on our mental health forum. It gives you a feel of the many… Continue reading Depression Awareness Month- What does it feel like?
Working Together for an AIDS-Free Generation
Saturday, December 1st, is World AIDS Day (hashtag #WAD2012), a time for re-upping your vigilance and awareness levels about HIV/AIDS. The global AIDS crisis is not over until an AIDS-free society is achieved, and unfortunately, we’re not there yet. That’s why the US theme for World AIDS Day 2012 is “Working Together for an AIDS-Free… Continue reading Working Together for an AIDS-Free Generation
Strengthen Your Knowledge During National Osteoporosis Month
Of the estimated 10 million Americans with osteoporosis – which means “porous bones” – 80% of them are women. That’s why we wanted to shine a spotlight on this condition during National Women’s Health Week. Approximately one in two women over the age of 50 will break a bone because of osteoporosis. Even more alarming… Continue reading Strengthen Your Knowledge During National Osteoporosis Month
Preparing for Life After an Organ Transplant
Last week, we shared our interview with a liver transplant recipient who is living out her dreams post-transplant. Today we’d like to add the insights of 32 organ transplant recipients who took part in an online discussion hosted by PatientsLikeMe. Split equally in gender with ages ranging from 25 to 60 years old, our discussion… Continue reading Preparing for Life After an Organ Transplant
What Do You Know About Thyroid Disease?
Let’s start with the basics: do you even know where your thyroid is? A small, butterfly-shaped gland located at the base of the neck (just below the Adam’s apple), the thyroid influences the function of the heart, brain, liver, kidneys and skin. That’s why it’s so important to know if you have a thyroid problem… Continue reading What Do You Know About Thyroid Disease?
Open Access for All: PatientsLikeMe’s Epilepsy Survey Results Now Published
Last April, we had the honor of presenting the results of our epilepsy survey at the American Academy of Neurology (AAN) Annual Meeting. In some of the key takeaways, we shared that 55% of respondents consider PatientsLikeMe “moderately or very” helpful in learning about the type of seizures they experience. 45% found it useful for… Continue reading Open Access for All: PatientsLikeMe’s Epilepsy Survey Results Now Published
Life with Parkinson’s Disease: What We’ve Learned
On Tuesday, our interview with blogger Steve Ploussard of “Attitude & Fitness Wins” revealed how one person is managing his Parkinson’s disease (PD). Today we take a closer look at this progressive neurological condition using the data and experiences shared by our 5,920 PD members. Taking a look at the makeup of our PD community,… Continue reading Life with Parkinson’s Disease: What We’ve Learned