November is National Diabetes Month, and this year, we caught up with Barry (bjf2000): history lover, grandfather and member of the diabetes community. Below, see what Barry says about his journey to diagnosis (“a flipping mess”), what it’s like to manage multiple conditions and becoming his own advocate. Tell us a little about yourself. What… Continue reading Barry shares his story for National Diabetes Month
“I’m still fighting for a good cause, just on a different battlefield” — Member Shanon opens up for Veterans Day
PTS member Shanon (sgreer) is a veteran of the US Army, and this Veterans Day, we’re sharing his story to honor those who’ve served and spread more awareness and understanding for the millions who are living with chronic conditions. Shanon is a police officer in Giddings, TX. When we caught up with him, he shared… Continue reading “I’m still fighting for a good cause, just on a different battlefield” — Member Shanon opens up for Veterans Day
Patients at work: Member Jenny launches online craft shop on Etsy
A few weeks ago, we kicked off a new blog series about patients who have started (or are working on launching) their own businesses. We’ll be featuring some enterprising members and learning more about how they manage their health and their career goals at the same time. Today, we’d like introduce Jenny, (jhound), a… Continue reading Patients at work: Member Jenny launches online craft shop on Etsy
“When the wind turns against you, adjust your sails” – Member Steve opens up about living with ALS
Say hello to Steve (sheronemus), a member of the ALS community who also struggles with depression. We recently caught up with him to learn about how his life has changed since his diagnosis, the importance of doing what you love and how he manages multiple conditions. Check out what he had to say about what… Continue reading “When the wind turns against you, adjust your sails” – Member Steve opens up about living with ALS
PatientsLikeMe Launches Virtual Trial for ALS Patients
Study With Major Academic Medical Center to Evaluate the Potential of the Soy Peptide Lunasin to Reverse ALS Symptoms DURHAM, N.C., October 25, 2016—PatientsLikeMe and The Duke ALS Clinic have just completed enrollment in a virtual trial designed to test whether Lunasin, a peptide found in soy and some cereal grains, is helpful or harmful… Continue reading PatientsLikeMe Launches Virtual Trial for ALS Patients
“I have been empowered to face the challenges of my condition” – Member Deb shares her journey with type 2 diabetes
Meet Deb (optimisticrealist), a self-described optimist who found no challenge too daunting, exercised daily and maintained a healthy diet. We recently caught up with her and she told us how her type 2 diabetes diagnosis changed the way she thought about what it meant to be healthy. Learn more about Deb’s story and what she… Continue reading “I have been empowered to face the challenges of my condition” – Member Deb shares her journey with type 2 diabetes
“Listen to yourself.” Member Daniela opens up about life with MS and psoriasis
Daniela (DanielaO) is living with multiple sclerosis and psoriasis in Puglia, Italy, and loves crafts, art history, music and traveling. She recently opened up to us about getting her first diagnosis at age 14, managing multiple conditions, and how connecting with others on PatientsLikeMe makes her feel “present and part of a whole.” Here’s what… Continue reading “Listen to yourself.” Member Daniela opens up about life with MS and psoriasis
“I have been trying to push myself more, little by little.” Member Christopher shares his journey with PTS
We recently got the chance to talk with Christopher (crine312), a computer-savvy dog lover and U.S. Air Force veteran living with PTS and bipolar. Christopher opened up about life after serving in the military — how he sometimes still thinks in military time and tries to avoid news reports about war — and the challenges… Continue reading “I have been trying to push myself more, little by little.” Member Christopher shares his journey with PTS
Global PF Awareness Month: An interview with Dr. Cosgrove from the Pulmonary Fibrosis Foundation
September is Global PF Awareness month, and a few weeks ago, members of the PatientsLikeMe PF community helped us kick it off by sharing in their own words what it’s like to live with this condition. The month is winding down now, so we caught up with our partners at the Pulmonary Fibrosis Foundation (PFF) to learn… Continue reading Global PF Awareness Month: An interview with Dr. Cosgrove from the Pulmonary Fibrosis Foundation
Overcoming Multiple Sclerosis: Member Casper opens up about his MS journey
We recently got to know Casper (casper80), a member of the MS community who’s been living with his condition for nearly a decade. Along with tracking his health on PatientsLikeMe, Casper follows the “Overcoming Multiple Sclerosis Recovery Program” (OMS), founded by Professor George Jelinek of the University of Melbourne over 15 years ago. The program focuses… Continue reading Overcoming Multiple Sclerosis: Member Casper opens up about his MS journey