Right at the start of April, you might have seen us post on the blog that it’s Parkinson’s (PD) Awareness Month. And to keep Parkinson’s awareness going strong all month long, we’re sharing a recent interview with PatientsLikeMe member Betty – aka dropsies to those in the community. She was diagnosed with Parkinson’s back in… Continue reading “I would just like to understand the ‘why’” – a conversation with PD community member dropsies
Tag: diabetes
Patients as Partners: The WHYSTOP Scale questionnaire results
We’re really excited to launch a new series here on the blog called Patients as Partners. The series will highlight the results and feedback that PatientsLikeMe members give on questionnaires from our Open Research Exchange (ORE) platform. What’s ORE all about again? PatientsLikeMe’s ORE platform gives patients the chance to not only check an answer… Continue reading Patients as Partners: The WHYSTOP Scale questionnaire results
Are you at risk? American Diabetes Association Alert Day
According to the American Diabetes Association (ADA), over 25 million people are living with type 2 diabetes in the United States, and 7 million aren’t even aware they have the condition. What’s more, 79 million people have prediabetes, a condition that can include several symptoms of diabetes.1 Do you know if you’re at risk… Continue reading Are you at risk? American Diabetes Association Alert Day
Diabetes, behavioral changes and a surprise donation: An interview with Melinda Maryniuk, MEd, RD, CDE, FADA
Diabetes Alert Day is just around the corner, and to get a jump start on raising awareness for this chronic condition, we recently caught up with Melinda Maryniuk. She’s the Director of Clinical Education Programs for the Joslin Health Solutions division within Joslin Diabetes Center. Her areas of special interest include nutrition, patient education, behavior… Continue reading Diabetes, behavioral changes and a surprise donation: An interview with Melinda Maryniuk, MEd, RD, CDE, FADA
As 2013 winds down… Part I
We wanted to take a quick look back and share how the PatientsLikeMe community has continued to change healthcare for good over the last year. Thousands of members added their voices to real-time research, all while providing support to one another and sharing about their personal health experiences. It really is a group effort, so… Continue reading As 2013 winds down… Part I
Uniting for World Diabetes Day and American Diabetes Month
Diabetes is one of the most widespread conditions in the world.1 Globally, more than 370 million people are living with diabetes, including over 25 million in the United States alone.2 And throughout November, the American Diabetes Association (ADA) will raise awareness about everything diabetes, from risk factors and genetics to proper diet and blood sugar testing. The… Continue reading Uniting for World Diabetes Day and American Diabetes Month
The Open Research Exchange- A talk with pilot researcher William Polonsky, Ph.D., CDE
You’ve probably seen some recent posts about PatientsLikeMe’s new Open Research Exchange. Medical researchers will be using our ORE website to pilot, deploy, share and validate new ways to measure diseases. And PatientsLikeMe members will have an opportunity to give feedback on their work, putting them – the patients – at the center of new medical… Continue reading The Open Research Exchange- A talk with pilot researcher William Polonsky, Ph.D., CDE
Living with diabetes: An interview with Dr. Richard A. Jackson
For many, living with diabetes can be an overwhelming experience that comes with serious health concerns including heart attack, stroke, kidney complications and eye problems. However, Dr. Richard Jackson thinks there is another reason diabetes patients may feel overwhelmed… the medical establishment. “A typical diabetes education program series might tell you 150 things, but that… Continue reading Living with diabetes: An interview with Dr. Richard A. Jackson
American Diabetes Assocation Alert Day – Is Today Your Wake-Up Call?
Today, March 26, 2013, is American Diabetes Association Alert Day, so we are doing our part at PatientsLikeMe by putting out our own alert. Are you at risk for type 2 diabetes? Take the American Diabetes Association’s Diabetes Risk Test right now to find out now. One in three adult Americans is estimated to have… Continue reading American Diabetes Assocation Alert Day – Is Today Your Wake-Up Call?
Taking Psoriasis Treatment to the Next Level: An Interview with Dermatologist Dr. Jerry Bagel
A nationally recognized psoriasis expert, Dr. Jerry Bagel, MD, has been an investigator on more than 45 clinical trials seeking new treatments for psoriasis and other skin conditions. In addition to treating patients at his private dermatology practice in East Windsor, New Jersey, Dr. Bagel serves as Senior Attending Physician at the Princeton University Medical… Continue reading Taking Psoriasis Treatment to the Next Level: An Interview with Dermatologist Dr. Jerry Bagel