Navigating Work with a Chronic Condition: Your Rights and Options Living with a chronic health condition can present unique challenges in the workplace. Many individuals find themselves struggling to balance their professional responsibilities with the unpredictable nature of their symptoms. If you’re in this situation, you’re not alone. In fact, over 51,000 members of PatientsLikeMe… Continue reading Working with a Chronic Condition: Your Rights and Options for Sharing with Your Employer and Taking Leave
Tag: patient advocacy
7 Ways to Feel Confident About Being Your Own Health Advocate
When you’ve been experiencing new symptoms or symptoms that have continued to get worse, going to the doctor can be nerve-racking. You may have even been a victim of medical gaslighting that is causing you to avoid going to the doctor. Or maybe you are scared of sharing such personal information about yourself with a… Continue reading 7 Ways to Feel Confident About Being Your Own Health Advocate
Is Your Doctor Gaslighting You?
You’ve noticed symptoms for a few weeks, maybe months or even since childhood. You visited doctor after doctor with no answer. Over time, the symptoms progress and may start to interfere with daily living. So you go to your doctor again, seeking some answers and solutions. But again, you don’t get a diagnosis or are… Continue reading Is Your Doctor Gaslighting You?
Defining “good” health care: 2 new studies reveal patient perspectives
Do you feel you’re getting the best possible care from your doctor? In two recent studies, PatientsLikeMe members answered this question and shared their perspectives on the health care they’re receiving. The results show that while patient opinions about care and provider performance vary according to condition, diverse patient groups agree on the top factors that define… Continue reading Defining “good” health care: 2 new studies reveal patient perspectives
Life-changing second opinion stories: “I decided to get a second and third opinion…”
Stories showing the importance of second opinions have been popping up in the media and on PatientsLikeMe. Check out the recent news headlines, hear a remarkable story of a PatientsLikeMe member who received a life-saving lung transplant after getting a second (and third) opinion, and share your own experience of piecing together your health puzzle.… Continue reading Life-changing second opinion stories: “I decided to get a second and third opinion…”
“I promise not to look upon myself with the scornful eyes of my past” – PatientsLikeMe’s Becca shares her promise
Becca Getto is an Associate Product Manager at PatientsLikeMe, and is recovering from an eating disorder. During her time in Monte Nedo Laurel Hill treatment program, she wrote a poetic and moving promise to herself, and in it she shares her past struggles and hopes for the future. Becca is more than her condition: she’s… Continue reading “I promise not to look upon myself with the scornful eyes of my past” – PatientsLikeMe’s Becca shares her promise
#MoreThan multiple sclerosis: Guest blogger Cathy Chester’s journey as a writer, mom, advocate and optimist
As part of our ongoing #MoreThan series, we’re continuing to highlight patients’ stories of all the ways they’re more than their diagnoses. Here, Cathy Chester – blogger, wife, mother and advocate – shares her diagnosis story and how she’s much more than MS. When I was in my 20s I was thrilled to work for… Continue reading #MoreThan multiple sclerosis: Guest blogger Cathy Chester’s journey as a writer, mom, advocate and optimist
Author, Reiki master, inventor, husband: Guest blogger Karl Robb shares why he’s #MoreThan Parkinson’s disease
Inspired by our new #MoreThan video series, patients have been speaking up about what makes them more than their diagnoses. Below, Karl Robb — blogger, author and advocate — shares his #MoreThan story about living with Parkinson’s disease. My name is Karl Robb. I have been blogging about Parkinson’s disease for over 10 years on my… Continue reading Author, Reiki master, inventor, husband: Guest blogger Karl Robb shares why he’s #MoreThan Parkinson’s disease
“I finally feel like there is hope for me to have a life that has purpose.” – Member Robin shares her story living with complex PTSD
Robin (survivinglife) is a PatientsLikeMe member living with complex PTSD. Recently, she shared her story with us, from her childhood to now, delving into the hardships she’s faced and how she continues to find the courage to forge through. Content within this story may be triggering for some readers. Here’s her story… I am a… Continue reading “I finally feel like there is hope for me to have a life that has purpose.” – Member Robin shares her story living with complex PTSD
“It gives me a source of hope”: Gloria’s 9+ years of tracking Parkinson’s disease and making connections on PatientsLikeMe
Member Gloria (sunshine221) has been here almost since the start. The Parkinson’s Disease (PD) community on PatientsLikeMe launched in 2007, and Gloria joined in 2008. We recently caught up with her about her early days with PD, how she has used PatientsLikeMe through the years and what she’s up to now. Early days with PD… Continue reading “It gives me a source of hope”: Gloria’s 9+ years of tracking Parkinson’s disease and making connections on PatientsLikeMe