In this installment of our Patients as Partners blog series, we’re sharing results from the High Blood Pressure Management, Adherence, Attitudes and Health Behavior Instrument – whew, that’s a mouthful! Doctors and nurses can use the instrument to better understand how people manage high blood pressure at home, and can help everyone learn more about… Continue reading Patients as Partners: Managing High Blood Pressure questionnaire results
Tag: PatientsLikeMe
Keeping up awareness for PTSD
Back in the beginning of June, we posted about PTSD Awareness Month, and now, we’re keeping the awareness going strong for PTSD Awareness Day. To help put a face on PTSD, we shared a bunch of videos from AboutFace, a website produced by the National Center for PTSD that’s all about telling real stories… Continue reading Keeping up awareness for PTSD
If you could share one thing… -Steven’s inspiring answer
PatientsLikeMe ALS member Steven (sheronemus) was diagnosed with ALS back in 2005, and we recently had the chance to ask a few questions about his experiences. Steven spoke about his initial anger and disbelief, the clarity and focus he developed afterwards and how technology helps him participate in many events he didn’t expect to witness.… Continue reading If you could share one thing… -Steven’s inspiring answer
“In my own words” – PatientsLikeMe member Eleanor writes about her journey with bipolar II: Part 2
Back in May, Eleanor (redblack) wrote about her some of her experiences with bipolar II to help spread the word for Mental Health Awareness Month. She’s continuing this month by sharing about the personal support system she’s developed through a wonderful relationship with her husband Jim, her special bond with a particular mood community member… Continue reading “In my own words” – PatientsLikeMe member Eleanor writes about her journey with bipolar II: Part 2
One Mind and PatientsLikeMe join forces to help people with post-traumatic stress and traumatic brain injury
Collaboration Will Uncover Real-World Experiences, Generate Patient Data That Improves Daily Living and Overall Understanding of Conditions SEATTLE, WA—June 12, 2014—One Mind and PatientsLikeMe announced a new multi-year collaboration to help the millions of people worldwide who are experiencing post-traumatic stress (PTS), traumatic brain injury (TBI), or both. The two organizations will work together to… Continue reading One Mind and PatientsLikeMe join forces to help people with post-traumatic stress and traumatic brain injury
“Sharing has given me support” – PatientsLikeMe member Debbie opens up about her MS
As PatientsLikeMe member Debbie (chilli123) says, it’s a very private decision whether or not to discuss MS openly. But as you’ll read, she’s doing more than just speaking about her MS – Debbie is spending time with others so they can better understand what life with a chronic condition is like. Debbie also talked about… Continue reading “Sharing has given me support” – PatientsLikeMe member Debbie opens up about her MS
Help make migraines visible in June
Migraines aren’t just simple headaches – they are intense, debilitating head pains that can last for a very long time if left untreated. That is just one reason why June is National Migraine Awareness Month. This month, everyone is working to get the word out about what it’s really like to experience a migraine. … Continue reading Help make migraines visible in June
Food for thought: May edition
Just last month, we shared about some of our community members’ favorite foods, and about how what they choose to eat can impact the conditions they live with every day. We heard from the fibromyalgia, type 2 diabetes and multiple sclerosis communities – and to keep the series going, we’ve got three new hot, or… Continue reading Food for thought: May edition
The Patient Voice- Fibromyalgia member Becca shares her story
What does sharing about health experiences and donating #dataforgood mean to her? “I’m hoping that my contribution is going to help others who come behind me who have these conditions have an easier time of it.” -Becca If you missed our video interview with Ed, a Parkinson’s disease member, you can catch that here.
“Just saying” – PatientsLikeMe member Shep talks frankly about his MS
The members of the multiple sclerosis (MS) community on PatientsLikeMe are very open when it comes to sharing about their journey, and shep0454 (aka Shep) is no exception. He recently spoke with us about his life with MS, and he pulled no punches when talking about his emotions after being diagnosed, the wonderful people he’s… Continue reading “Just saying” – PatientsLikeMe member Shep talks frankly about his MS