CAMBRIDGE, Mass.–(BUSINESS WIRE)—PatientsLikeMe and Shire plc (LSE: SHP, NASDAQ: SHPG) have announced a new collaboration that will support the development of a patient-centered, real world health learning system that expands understanding of patient health and disease. Shire, the global leader in rare diseases and other highly specialized conditions, will work with PatientsLikeMe to appropriately engage… Continue reading PatientsLikeMe and Shire Pharmaceuticals Collaborate to Study Rare Genetic Diseases
World Health Day 2017: #LetsTalk about depression and mental health
Today is World Health Day! This year, the World Health Organization (WHO) hopes to spark discussions about mental health with their campaign called “Depression: Let’s talk.” Depression affects more than 300 million people of all ages, from all walks of life, in all countries – but less than half of people with depression (even less… Continue reading World Health Day 2017: #LetsTalk about depression and mental health
Paul Wicks on the power of sharing data
Back in December, our VP of innovation, Paul Wicks, Ph.D., spoke at the annual International Symposium on ALS/MND in Dublin. The goal of the annual meeting is to share new understandings of ALS/MND as quickly as possible through collaboration between leading researchers around the world. Now, we’re sharing a video of his presentation about what… Continue reading Paul Wicks on the power of sharing data
Teaming up with LupusChick to boost chronic condition awareness
PatientsLikeMe is excited to announce a new partnership with “LupusChick,” Marisa Zeppieri-Caruana. She’s an influential blogger, advocate and advisor for the lupus and chronic condition community – and an all-around cool gal. Marisa grew up with various health issues and suffered serious injuries in April 2001 when she was run over as a pedestrian by… Continue reading Teaming up with LupusChick to boost chronic condition awareness
3 energy-saving tips for people with lupus
Fatigue can be a big deal when you have lupus. About 43 percent of PatientsLikeMe members with systemic lupus erythematosus (SLE) who are tracking fatigue as a symptom say that it’s “severe.” A rough day can feel like “walking through knee-deep water,” notes one member. Here’s a roundup of energy-saving tips from a few different… Continue reading 3 energy-saving tips for people with lupus
Parkinson’s podcast: Member Gary talks music and movement with dancer Pamela Quinn
In a quest to learn about the benefits of music for people with Parkinson’s disease, we met Pamela Quinn, a professional dancer in New York City who was diagnosed with young-onset PD more than 20 years ago. These days, she teaches thriving dance classes in Brooklyn and Manhattan for people with Parkinson’s (check out her… Continue reading Parkinson’s podcast: Member Gary talks music and movement with dancer Pamela Quinn
44 Celebrities With Kidney Disease
Roughly 37 million US adults have chronic kidney disease (CKD). Kidney disease is a silent killer, ranking as the number one leading cause of death. Your kidneys are about the size of a computer mouse and filters all the blood in your body. Their primary role is to remove waste, toxins, and excess fluid. They also… Continue reading 44 Celebrities With Kidney Disease
“My experience as a patient and son helps me”: PatientsLikeMe software engineer Alex’s backstory
Meet Alex Bromley, a PatientsLikeMe software engineer who’s living with gastroesophageal reflux disease (GERD) and whose mother has fibromyalgia. He recently shared some insight on his and his mom’s conditions, his experiences as both a PatientsLikeMe employee and member and what he enjoys outside of work. What first drew you to working at PatientsLikeMe? Can… Continue reading “My experience as a patient and son helps me”: PatientsLikeMe software engineer Alex’s backstory
Multiple myeloma community members form “forever friends” by taking it offline
What started as a simple chat between friends in the forum evolved into something much bigger. Members from the multiple myeloma community on PatientsLikeMe decided to take their friendship out of the forums and into real life. Marcia (marcia_holman), Dennis (DennisIvan), Paul (paulatsea) and Lee (Dapylil), along with spouses and grandchildren, got together and discussed… Continue reading Multiple myeloma community members form “forever friends” by taking it offline
March is Brain Injury Awareness Month. Let’s learn more, together.
Brain injuries can happen to anyone, anywhere at any time. The important thing to know is that you’re not alone, which is the primary theme of Brain Injury Awareness Month organized by the Brain Injury Association of America (BIAA). At least 2.5 million children and adults sustain traumatic brain injuries (TBI) in the U.S. each… Continue reading March is Brain Injury Awareness Month. Let’s learn more, together.