It’s time for another Patients as Partners post, and today, we’re happy to share the results of the Hallucinations and Parkinson’s disease questionnaire. In March 2014, more than 500 PatientsLikeMe members living with Parkinson’s disease (PD) took part in an Open Research Exchange (ORE) questionnaire about their condition. They worked with Dennis Chan and Ruth… Continue reading Patients as Partners: Hallucinations and Parkinson’s disease questionnaire results
Tag: PatientsLikeMe
PatientsLikeMe Attends 4th Annual ALS TDI White Coat Affair
Back in November, a whole group from the PatientsLikeMe team came together for a great cause and attended the 4th annual A White Coat Affair gala benefiting the ALS Therapy Development Institute (ALS TDI). ALS TDI, founded by PatientsLikeMe Co-Founder and Chairman Jamie Heywood in 1999, is the number one nonprofit biotechnology organization dedicated to… Continue reading PatientsLikeMe Attends 4th Annual ALS TDI White Coat Affair
PatientsLikeMe adds information about patient experiences with medications to Walgreens Pharmacy website
Newly-enhanced health dashboard now includes access to patient-reported data on side effects for 5000+ medications CAMBRIDGE, MA., February 18, 2015—PatientsLikeMe is working with Walgreens to help make it easier for people to understand how the medications they take may affect them. Now, anyone researching a medication or… Continue reading PatientsLikeMe adds information about patient experiences with medications to Walgreens Pharmacy website
Recognizing National Donor Day
It’s Valentine’s Day, and besides flowers and candy, there’s a special way you can show somebody love today – by registering as an organ donor to give the most precious Valentine of all: the promise of life. February 14th is also National Donor Day, and it’s all about recognizing those who have donated in the… Continue reading Recognizing National Donor Day
“You can get better” – PatientsLikeMe member jeffperry1134 shares about his journey with PTSD
Many veterans are a part of the PTSD community on PatientsLikeMe, and recently, jeffperry1134 spoke about his everyday life after returning home from military service. In his interview, he touched upon his deployment to Somalia in the early 1990s, and how his memories of Africa cause daily symptoms like anxiety, hallucinations and nightmares. But despite… Continue reading “You can get better” – PatientsLikeMe member jeffperry1134 shares about his journey with PTSD
Getting to know our Team of Advisors – Karla
This past Monday on the blog, Emile shared about her fibromyalgia and what being a part of the PatientsLikeMe Team of Advisors means to her, including how she hopes to help doctors understand that patients need to be treated as individuals, rather than just disease names. Today, we’re featuring Karla. She’s also a member of… Continue reading Getting to know our Team of Advisors – Karla
Getting to know our Team of Advisors – Emilie
If you’ve been following the blog, you’ve already met three members of the PatientsLikeMe Team of Advisors – Dana who is living with bipolar II, Lisa who is living with Parkinson’s and Becky who is living with epilepsy. Now, we’d like to introduce Emilie, a social worker and therapist who is living with Sjogren’s Syndrome and… Continue reading Getting to know our Team of Advisors – Emilie
“The human spirit is more resilient than we think” – PatientsLikeMe member mmsan66 shares her journey with ALS
PatientsLikeMe member mmsan66 was diagnosed with ALS back in 2008, but she’s been fortunate to experience an unusually slow progression, which currently affects only her legs. As a college professor, financial planner and ALS advocate, she raises awareness through her work with the Massachusetts Chapter of the ALS Association. She even finds time to visit… Continue reading “The human spirit is more resilient than we think” – PatientsLikeMe member mmsan66 shares her journey with ALS
What do you know about cervical cancer?
January is Cervical Health Awareness Month, but it’s not just a month to learn more about cervical cancer, it’s about learning how to prevent it. Since the 1950s, there’s been in increased effort to raise awareness for prevention screening, and from 1955 to 1992, the cervical cancer incidence and death rates declined by 60 percent.1… Continue reading What do you know about cervical cancer?
PatientsLikeMe members to be highlighted in patient empowerment webinar
Many PatientsLikeMe members talk openly about the reasons why they donate their health data and why they believe patient-centered healthcare means better healthcare for all. And just a week from now, two of them will be sharing their stories with everyone in a live webinar. On Tuesday, January 20th, at 2:00pm EST, the Partnership to… Continue reading PatientsLikeMe members to be highlighted in patient empowerment webinar