What Are Fundamental Needs for Better Quality of Life? When you think about your fundamental needs, what comes to mind? At first, you might consider basic necessities like food, water, and shelter. However, fundamental needs are dynamic, encompass so much more, and will continue to evolve over time. Fundamental needs are the things that everyone… Continue reading Chronic Pain Management: Meeting Fundamental Needs for Better Quality of Life
Category: Health and Wellness
A Parenting Guide for Congenital Adrenal Hyperplasia (CAH)
Medically reviewed and verified by Kate Burke, MD, MHA When it comes to caring for your child’s health, understanding their condition and how it affects them is the best way to be prepared. For lifelong genetic disorders like congenital adrenal hyperplasia, often times this can be overwhelming! The terminology is confusing, the treatment is complex,… Continue reading A Parenting Guide for Congenital Adrenal Hyperplasia (CAH)
What is 21-Hydroxylase Deficiency?
Medically reviewed and verified by Kate Burke, MD, MHA If you or a loved one is living with congenital adrenal hyperplasia (CAH), you may have questions about the underlying reasons behind the disease. What is it inside your body that causes CAH to develop? Often, this is because of an inherited disorder affecting your adrenal… Continue reading What is 21-Hydroxylase Deficiency?
Congenital Adrenal Hyperplasia (CAH) and Mental Health
Medically reviewed and verified by Kate Burke, MD, MHA Our adrenal glands are responsible for how we respond to stress. They also regulate our metabolism, support immune health, and help regulate blood pressure. The hormones produced by the adrenal glands are what enter our bloodstream and cause physical and emotional reactions to stressors and events.… Continue reading Congenital Adrenal Hyperplasia (CAH) and Mental Health
A History of Hereditary Diseases: How our Past Informs the Future of Care
Medically reviewed and verified by Kate Burke, MD, MHA Since ancient times, people have noticed that certain traits and conditions tend to run in families. Early civilizations, such as the Babylonians, recognized hereditary patterns in animals and crops. They practiced selective breeding to build desirable traits, though the underlying mechanisms of heredity were still a… Continue reading A History of Hereditary Diseases: How our Past Informs the Future of Care
The Power of Perception: How Your Mindset Shapes Your Health
Estimated reading time: 6 minutes Health Perception We’ve all heard the saying, “Perception is everything.” But what if it were also a predictor of how healthy we are and how long we live? It can be important to reflect on our overall perception of health so that we can identify areas of improvement and establish… Continue reading The Power of Perception: How Your Mindset Shapes Your Health
Cerebral Amyloid Angiopathy: A Guide for Patients and Caregivers
Medically reviewed and verified by Kate Burke, MD, MHA When proteins in the body misfold, they can spread to different organs and tissues. There, they start to accumulate. Over time, this build up of proteins can damage wherever they have landed. In many cases of amyloidosis, they spread to multiple parts of the body. In… Continue reading Cerebral Amyloid Angiopathy: A Guide for Patients and Caregivers
Oral Amyloidosis: How it Can Affect the Tongue
Medically reviewed and verified by Kate Burke, MD, MHA In previous articles, PatientsLikeMe has covered how the disease amyloidosis can affect different parts of the body. The digestive system, the brain, the heart. When proteins misfold, they can spread throughout the body and cause damage to any number of organs and body parts. That includes… Continue reading Oral Amyloidosis: How it Can Affect the Tongue
Stem Cell and Organ Transplants as Treatment for Amyloidosis
Medically reviewed and verified by Kate Burke, MD, MHA In the course of treating amyloidosis, doctors will try to manage and control the disease with medication. There is no cure, so the goal of treatment is to manage symptoms and limit the further production of harmful amyloid proteins. For some, medication cannot stop the disease… Continue reading Stem Cell and Organ Transplants as Treatment for Amyloidosis
The Effect of Amyloidosis on Vision
Medically reviewed and verified by Kate Burke, MD, MHA PatientsLikeMe has covered how the condition amyloidosis affects the body and various organs. This disease causes proteins to misfold, and as they build up across the body they disrupt its normal function. These protein deposits can land anywhere, although they are more commonly found in places… Continue reading The Effect of Amyloidosis on Vision